Chucks, Diapers, Toothettes, Morphine, Methadone, Wipes, Iv’s, Choking, Gait Belts, Lip Reading, Tears, Frustration, Nurses, Constipation, Disempactments, Enemas, Wheel Chairs, Rolling Sheets, Straws, Syringes, Sleepless Nights, Panic Attacks, 21 Meds A Day, Sleepless Nights, Plastic Sheets, Carpet Cleaning Machines, Ice Cream, Jello, Applesauce, Infections, Anger, Sadness, LOVE.
10 months ago that was my daily life. 10 months ago I was taking care of Duane while he was DYING. Dying a slow, painful death from one of the most under funded diseases there is.
Duane refused all medical intervention. No feeding tube, trach, suction, oxygen… Nothing. He was doing this his way. (Like always.) We stayed positive and laughed and joked around, but it wasn’t positive or fun. It was hell. Everyday was hell. In honor of May being ALS awareness month I am going to share with you the other side of our life. The side we rarely shared.
– xoxo Victoria