“They say time is the only healer God, I hope that isn’t right ‘Cause right now I’d die to not remember Every little thing I remember every little thing The high, the hurt, the shine, the sting Every little thing”, – Carly Pearce / Emily Marie Shackelton / Michael James Ryan Busbee

 

Chucks, Diapers, Toothettes, Morphine, Methadone, Wipes, Iv’s, Choking, Gait Belts, Lip Reading, Tears, Frustration, Nurses, Constipation, Disempactments, Enemas, Wheel Chairs, Rolling Sheets, Straws, Syringes, Sleepless Nights, Panic Attacks, 21 Meds A Day, Sleepless Nights,  Plastic Sheets, Carpet Cleaning Machines, Ice Cream, Jello, Applesauce, Infections, Anger, Sadness, LOVE. 

10 months ago that was my daily life. 10 months ago I was taking care of Duane while he was DYING.  Dying a slow, painful death from one of the most under funded diseases there is. 

Duane refused all medical intervention.  No feeding tube, trach, suction, oxygen… Nothing. He was doing this his way. (Like always.) We stayed positive and laughed and joked around, but it wasn’t positive or fun. It was hell. Everyday was hell. In honor of May being ALS awareness month I am going to share with  you the other side of our life. The side we rarely shared. 

– xoxo Victoria 

 

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One thought on ““They say time is the only healer God, I hope that isn’t right ‘Cause right now I’d die to not remember Every little thing I remember every little thing The high, the hurt, the shine, the sting Every little thing”, – Carly Pearce / Emily Marie Shackelton / Michael James Ryan Busbee

  1. God bless you Victoia. It sounds like hell. I know I would not be strong enough to do that. When my husband had his stroke and they were telling me what to expect I knew I could not do that. I was shocked and did not know what I would do. I think God knew that as well as he had a second stoke which he never regained concoiness from. I know that sounds heartless but I physically would not be able to take care of him. He was a BIG guy! I would have gotten him help. But I could not do it. But the fact that you did that must have been so hard for you! You probably get tired of people saying what an amazing woman you are. When what you probably want to do is punch a hole in the wall!

    Liked by 1 person

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